Local participant relationship
Contact, identity, participation support and required local records.
DISCOVERY TRIALS / PLANNED
Research moves forward.
People choose how.
Build the relationship between study teams and participants around understanding, specific choices and a clear privacy boundary. Participation opens a defined research pathway, never unrestricted access to a person’s records.
Follow the participation journeyPARTICIPANT FIRST
A clear purpose.
A specific choice.
An ongoing relationship.
THE PARTICIPATION JOURNEY
Understanding
before enrollment.
Each decision belongs to a particular study. Open a stage to see the intended responsibilities and limits.
Consent and withdrawal- 01
Understand the invitation
Who is running the study? What question is it asking? What activities, risks, information uses and retention terms apply? The reviewed brief must explain these before someone decides to participate.
BoundaryThe local study site remains responsible for contact and participant identity. A Vault listing does not authorise contacting contributors.
- 02
Establish eligibility with less disclosure
Where a suitable proof exists, establish a necessary eligibility predicate without circulating the underlying attributes. The protocol, proof design and clinical suitability checks still need review.
BoundaryA zero-knowledge proof is limited to its defined statement. It does not establish informed consent, clinical safety or the anonymity of an entire dataset.
- 03
Make specific participation choices
Separate agreement to participate from optional future research, optional AI training and any additional disclosures. Keep consent version, purpose and the person’s choices together.
BoundaryNo preselected blanket permission. No enrollment by an agent. Consent does not open identifiable records to other clinics.
- 04
Stay informed as the study changes
Explain updates, contacts, corrections and how to withdraw. Enforce the applicable change on future authorised access and participation.
BoundaryExplain which records must be retained and what cannot be recalled from released results or trained models. Do not promise universal retroactive erasure.
CONNECTED SITES, LOCAL RESPONSIBILITY
Coordinate the research.
Keep identity at its source.
A shared research question does not require a shared identity register. The planned architecture separates local participant management from anonymized research collaboration.
Anonymized research only
Purpose, approvals and output review
Local participant relationship
Its own accountable staff, custody and participation decisions.
CLEAR ANSWERS
Understand the
boundaries.
Is shared research data anonymized?
Yes. Anonymized data only is the required model for research sharing in Hybrid Discovery. Identifiable patient records stay with the originating custodian; they are excluded from cross-clinic sharing and third-party AI requests. Medical sharing and anonymization services are planned and must pass validation before launch. No patient data is collected or shared by this website.
Does consent allow clinics to exchange my identifiable record?
No. The Discovery research-sharing model excludes identifiable patient records from cross-clinic exchange. Study participation and optional uses remain specific; identity and contact stay with the responsible local site.
Can I join a trial or receive compensation now?
No. Trial participation and any study-specific compensation are future possibilities requiring protocol, operational and participant-protection review. No such programme is available here.
ADVANCE DISCOVERY TOGETHER
A stronger study begins
with an informed participant.
Define the study relationship before building the participation tools.